top of page

BLOG


When it rains, it pours..
<-- my throne, where i'll be spending the next few days. ;) This seems to be my pattern lately… I’m either feeling great or my body...


The Wait...
(my packed transplant BAG pictured above) It's officially been 3 months since I've been listed for a double lung transplant. I try not...


How much blood is "too much blood"??
I know that's sounds crazy but the reality is occasionally coughing up blood (hemoptysis) is not too uncommon in CF. But chances are if...
bottom of page