©2019 by Salty Roses.

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March 22, 2019

Here are some pictures of scrawny childhood and my smoking thick baby body on the beach ;) ....

Today I want to talk about body image and struggles with weight. Yes, WEIGHT. It’s such a touchy subject to most people, especially women. I find it so rare to come across someone who happily admits to being happy or satisfied with how their body looks. I myself am guilty of being vain… I have been losing weight consistently since transplant due to GI issues and I’m mostly attributing the recent loss in now having the norovirus f...

November 11, 2018

 Rainbow Falls in The Blue ridge mountains :)

It's  been a long time since I've written and that is historically a good sign. It just means i've been busy LIVING life. It doesn't mean I am cured or that everyday is perfect but honestly, I am amazed at how fast time has gone by. Today is officially 9 months post-surgery date, 9 months since a family lost their loved one but made the decision to selflessly give another human a second chance at life. I have had 9 more months with the people I love, I have taken deep breaths fr...

June 19, 2018

<-- Daily walks on transplant floor :)

After arriving home, I was still very weak from the Norovirus and although I had the dream team with me to cook and feed me, my body just wasn't having food and could barely tolerate fluids. I was no longer hooked to an IV so I had to rely on keeping everything down in order to rehydrate from the constant diarrhea and nausea. The cramping just kept getting more intense and even the thought of food would make me gag, although that didn't stop my mother from force feeding me and forcing...

April 24, 2018

Showing off my staples after drainage tubes came out... please don't mistake post-op picture for nudity... this is reality.

Feb 13th-

So we left off with me being ALIVE!! Little did I know there was lots of hard work left.  After all the tests the sedation was starting to wear off and the exhaustion started to take over. Coming back off the Vent was way harder than I thought. It felt like the second the drugs wore off, my new lungs had to keep up with running a marathon that I didn't train for. I begged, writing on my whiteb...

April 4, 2018

(Fresh Out of 8 hr surgery with brand new lungs!!)          It has almost been 6 weeks and I feel like this is the right time to share my experience since transplant before details begin to get lost. Prograf brain is a real thing so short term memory isn't the greatest but thankfully my mother and Johnny was taking notes while i was in and out.

Feb 10th 2018- The call came in around 6:00AM- Johnny picked up the call because i was still passed out. Quickly ran the phone to me and that's when i was gi...

January 16, 2018

<--picture of me forcing my love on fuzz 😂         I woke up today feeling extremely down mentally. I have had a hard time the last few weeks physically and mentally. I am going to be completely honest and admit that I wrote an entire blog about the status of my health and the details of my test results and each little set back and decline in status and then just decided to delete the entire post!  My reasoning is that those things aren't hard for me to talk about... those are facts. The hardest thing for me to admit is t...

January 3, 2018

<--leaving after no sleep and no lungs.       On Dec 7th after days of not feeling well, i finally mustered up enough energy to get outta the house and get my butt to kohls to do a little Christmas shopping... when parking in the lot i got my first call that they may have a match of lungs for me but there is another center also trying to get the lungs. They informed me that the lungs weren't perfect but believed they would be after undergoing ex-vivo (a therapy when lungs are treated outside donors body to i...

November 20, 2017

<--testing my fat mass- I did good on this one!! ;-)      As we have learned the last few months (now almost 6 months listed), the list at Columbia is quite long and i am not at the top of the list yet. This poses and issue because winter is especially hard for me and I usually see a decline during these months and I don't have much function left to spare.  So earlier this week I was finally scheduled to do the battery of tests down at the University of Pennsylvania to see if they would accept me as a patient for duel list...

November 8, 2017

 <--Candid pic my bro snapped.         So I received some answers after my RE-admission to the hospital. First we discovered that my i have really skinny monkey feet.... (haha- but seriously) I always thought that i would be able to tell if i was retaining fluid but apparently my feet look like a normal persons when they are swollen and when they aren't... well monkey feet with bones sticking out. So most doctors that looked at my feet and ankles, couldn't tell if i was or wasn't retaining water even wh...

October 23, 2017

<-- Still Got me LOCKED UP!      Mantras can be a powerful thing. Originally used in Hinduism and Buddhism, a word, phrase or sound is repeated to reach a deep state of meditation. Mantras have been translated into endless religious and spiritual practices now and are often used as a tool in everyday life to concentrate or focus and express ones intention. Over the last year or so I have picked up mantras of my own that have helped me get through tough times.  

 1. "Just breathe".. well besides being a huge C...

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