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Room with a View

<--- Room view this morning TGIF!!! For most people that means only one more full day of work, for myself it means only 3-4 more days...

The IV routine

<--Snapchat filters keep me entertained! So following my latest appointments and my feeling that something nasty was starting to grow...

Transplant Clinic Day

<<-- Is it me or does this "lung" look super perverted??!! hahaha (we're making the best of our time in waiting rooms) This past Friday I...

When it rains, it pours..

<-- my throne, where i'll be spending the next few days. ;) This seems to be my pattern lately… I’m either feeling great or my body...

The Wait...

(my packed transplant BAG pictured above) It's officially been 3 months since I've been listed for a double lung transplant. I try not...

How much blood is "too much blood"??

I know that's sounds crazy but the reality is occasionally coughing up blood (hemoptysis) is not too uncommon in CF. But chances are if...

Just Two Roses

For my birthday this year in April, Johnny got me a gift certificate to a tattoo shop because he knew that I had wanted a specific tattoo...

ENT,CF check-up, Lung Surgeon

Today I had a long day of appointments but I was spoiled because I had my mom with me to drive and help out today! I admit I was a bit...

Infectious Disease

Since my first Solo Clinic day went so well and I’ve been having a good few weeks, I decided to go to my infectious disease appointment...

The O2 Struggle #2

It has now been about three months since I’ve been on oxygen 24/7 and my lungs don't seem to be bouncing back into “lets move some oxygen...