<--Snapchat filters keep me entertained! So following my latest appointments and my feeling that something nasty was starting to grow in the lungs, I pretty much knew the call was coming soon for IV meds. I've been lucky enough to go a really long stretch of 3 months without them, and I started to get accustomed to being free of my port access and extra tubes to carry around and such. I was dreading the inevitable and Johnny even surprised me with flowers on Friday bc I thi

<<-- Is it me or does this "lung" look super perverted??!! hahaha (we're making the best of our time in waiting rooms) This past Friday I had a full day of appointments that was scheduled by my transplant team at Columbia medical center in order to check and update all of my levels and keep me up to date on my listing status etc. Johnny was taking me for the day so we packed up a lunchbox and headed to our fun filled day of sitting in waiting room after waiting room. Since m