Everyday seems to presents itself with challenges, sometimes reoccurring ones and sometimes new challenges that force me to get creative. As I sit here with my concentrator humming its usual tune, I reflect on the first week a few years back when I started on Oxygen at night and how annoyed I would get at wrapping it around my head just to get a good night sleep and how many hours I spent looking up the best soft and squishy cannula to fit my head and smallest size (pediatric

I was told at my previous appointment with the transplant team that once my last exam was finished my case would be presented before a committee of doctors and team members on a board and they would generate something called an allocation score, which determines where a person is placed on the transplant list. The higher the score, the quicker you receive new organs. As much as I would love a high score, it also means the patient is usually a lot sicker. I have had three prev