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9 Months!!!

November 11, 2018

 Rainbow Falls in The Blue ridge mountains :)

 

It's  been a long time since I've written and that is historically a good sign. It just means i've been busy LIVING life. It doesn't mean I am cured or that everyday is perfect but honestly, I am amazed at how fast time has gone by. Today is officially 9 months post-surgery date, 9 months since a family lost their loved one but made the decision to selflessly give another human a second chance at life. I have had 9 more months with the people I love, I have taken deep breaths from the bottom of my lungs,  i've traveled,  i've gone hiking, I've been to a concert, I've celebrated my 2nd year marriage anniversary with my best friend, i've watched friends get married, celebrated the start of my husband branching out with his own business, I've spread awareness and knowledge about organ donation at festivals, schools and craft fairs, and I've met and watched some of my best friends children and nieces and nephews grow up in just 9 months. If i died tomorrow, I would still be eternally grateful for the extra time and experiences i've had in this short amount of time. 

 

Nothing in life is perfect and as I sit here in my pajamas for the second day in a row,  sipping theraflu with a terrible head cold and ear infection, I am reminded at how drastically life has changed in such a short time. Previously this kind of cold would wipe me out and put me right back in the hospital. Don't get me wrong, I feel TERRIBLE right now and I am STILL at risk and a cold with little to no immune system is still no walk in the park. But it is the first time in MANY years that I have not been on IV antibiotics immediately. I still have Cystic Fibrosis and thick sticky mucus in my head, and with the immune suppressant drugs, i am at a higher risk for viruses (especially this time of year) but with these new lungs WIthOut the thick sticky mucus, I am hoping this will remain viral and not turn into a lung infection.  I am still new to this, but I have hope.  My 9 month bronch is on Monday (johnny's birthday) so i'm hoping for good results and planning on a lot more rest and relaxation indoors will be enough to kick this. 

 

 

Until next time,

XOXO- Salty

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