August 30, 2017

<--    my throne, where i'll be spending the next few days. ;) 

This seems to be my pattern lately… I’m either feeling great or my body just falls apart all at once. I’m sure there is a correlation between my health issues all at once but it could also be my kind of luck. Who knows. Anyway, the last week I’ve been having bad back pain on and off that seemed all too familiar. I normally have upper back and neck issues daily from coughing constantly but this began as a dull achy back pain for the first two days...

August 27, 2017

(my packed transplant BAG pictured above)   It's officially been 3 months since I've been listed for a double lung transplant. I try not to count the days or months but it's also a weird feeling to know that one day your world that you've worked so hard to adapt to is going to throw you for a loop again..  and it could happen at any minute. I've grown used to all my treatments and find comfort in some of them now and although it's not my favorite i've even adjusted to the oxygen cord that tangles me dai...

August 3, 2017

I know that's sounds crazy but the reality is occasionally coughing up blood (hemoptysis) is not too uncommon in CF. But chances are if you have to ask if it's too much... It probably is. Well that's unfortunately how my morning started yesterday. I woke up to a weird gurgling feeling deep down in my lungs that didn't feel quite like my normal mucus in the morning and as I sat up it came almost pouring out.. bright red as if i popped something. So of course I sit for a minute and think... Is this too much?? I get up and go...

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